When I returned to work I couldn’t resume my normal duties. Because of the lupus on the brain my concentration and memory were affected and I also had a problem with arithmetic.
I then had to do alternative duties which were also not easy. But I had to stay focus and I tried to do my work to the best of my ability. I was still receiving Chemo and was out of work a lot.
My superiors and co –workers were always very supportive and understanding.
As time went on the Lupus affected my joints and I was also diagnosed with fibromyalgia which was very painful and unbearable .The pain was and is sometimes so bad that I can’t keep a cup of coffee in my had or cook a pot of food for my family. Especially during winter when it’s cold and wet the pain is worse.
During the last 6 years I was more out of work than in work due to constant pain and other complications to the lupus and the side effects of my medication.
After 23 years’ service and suffering with lupus for 6 years, my specialist recommended a medical board. I am off sick for almost 6 months now and waiting in anticipation for the outcome of my application which I hope the findings will be favourable. Now that I’m at home I feel much more relaxed ad stress free. And stress is my worst enemy as like the sun it aggravates the lupus.
The last 6 years was not easy for me and my family but I believe that The Almighty Allah Swt /God won’t give you a burden too heavy to carry. I feel I was given this disease for a reason. It made me a stronger and more God conscious person. I sincerely believe that if you accept whatever Allah Swt /God bestow upon you, whether it’s an ailment or a problem it becomes so much easy to handle.
Thank you for documenting your journey. I know and believe others will find inspiration through what you're sharing.
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