Live your dream before you wake up and realise you lived but you weren't realy alive

When we are young and carefree we have dreams and set goals for ourselves.We have this idea or picture of how our lives would be like in the future.We dream about  having the perfect partner, a flourishing career,a house with a white picket fence, a fancy car and a beautifull family.But as time goes on and  we grow older we realize life is far from the perfect picture we had in mind because we are so busy trying to create our dream that we forget to live our dream.Make sure you get to live your dream before you wake up and realise you lived but you werent realy alive.

Emotionally and physically I’m not in a good space :(

So I haven’t updated my blog in ages but I promise from today on I will try my outmost best to update it on a regular basis.

Since I last up dated I was diagnosed with 2 other diseases:Sjogrens and Osteoporosis

Emotionally and physically I’m not in a good space. My osteoporosis was brought on by my long term steroid treatment for my lupus. My bones are now very brittle and I have to be careful not to fall and fracture a bone. It will be detrimental to my body and the recovery period will be very long. From all the diseases I was diagnosed with the last 11 years being diagnosed with osteoporosis hit me the hardest. Because of Sjogrens my mouth is constantly dry and my tear ducks are dried out which means I don’t produce tears and I also don’t have any taste buds

I am not questioning my Creator but I am only human and sometimes it all gets too much for me. And I asked myself how much more pain must and can I still endure, what is next on the list for me. Pain is hitting me from all over.Lupus,fibromyalgia,Sjogrens and Osteoporosis are all causing pain. I always had my on and off days but now it seems as if I have more on then off days. I go sleep with pain and wake up with pain and its really getting to me.

But what can I do…I must try to remain strong and positive even though it’s not always easy just to ignore the discomfort and pain but I always tell myself Allah Swt won’t give me anything I can’t handle and there is people that are worst off than me.

May Allah Swt may it easy for all the sick people,ease their pains and fill their hearts with sabr and contement Ameen In Shaa Allah

Sjogrens

Sjogrens  syndrome is an autoimmune disease that mainly affects the eyes and salivary glands, but can affect different parts of the body. In more serious cases of sjorgen’s syndrome, the immune system can attack other parts of the body, causing symptoms and conditions such as dry skin tiredness and fatigue – which are common and can lead to total exhaustion, muscle pain, joint pain, stiffness and swelling ,vasculitis  (inflammation of blood vessels)

Osteoporosis

Osteoporosis is a bone condition that makes bones thinner and more fragile because of reduced bone density, and it puts people at risk of fractures, especially of the hip, spinal vertebrae and wrist. are some key points about osteoporosis. Postmenopausal women are most likely to get the condition, but it also affects men and younger people. There are risk factors for osteoporosis, including avoidable causes such as smoking. There are no symptoms caused by the loss of bone density in osteoporosis. Fractures are most likely in the spine, hip and wrists. Diagnosis is made directly via a special X-ray-based scan, but sometimes ultrasound. Treatments include drugs that prevent or slow down bone loss, exercise programs, and dietary adjustments, including extra calcium and vitamin D.Taking measures to avoid falls is important in the prevention of fractures in people who have osteoporosis.

Ladies Lupus Awareness Evening

Ladies Lupus Awareness Event 2014.05.09

So on the 9^th May we had our 1^st Lupus awareness event which was very well attended.

Evening was filled with tears, laughter, fun, scrumptious food, singing, dancing but most importantly AWARENESS.

Shukran/Thank you once again for everyone who assisted me in making the event a success and for all those who attended the event.

May you all be blessed abundantly Ameen In Shaa Allah

 

Colour Purple for Lupus

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Feroza sharing spoon theory 

 

 

 

 

 

 

Julie Martin Representative of The Arthritis foundation  talking about Lupus

 

Awaatief Adams with her beautiful melodious voice rendering a song

 

 

 

 

 

 

 

1 of our lucky draw winners

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Our Miss Lupus Glitz and Glam Kauthar Ryland

 

 

 

 

 

 

Lupus survivor Shameema with her friends

 

 

 

 

 

 

 

 

 

 

 

Kasha   of the best dress winners

 

 

I love them beyond infinity

29 April 2014


2 years ago I was wondering if I  was still going to be around today to see my son "Imtiyaaz" finding his spot in the workplace.

 He started his second job 1 year ago and tomorrow he is going for an assessment at another company.In Shaa Allah I hope he

 Ace the assessment so that he can qualify for an interview. So proud of the young man he is becoming :)

 My worse fear was that I wasn't going to be   around to see my daughter do her matric and celebrate her 18th birthday but Algamdoelilaah Allah Swt granted me the opportunity to witness all of the above :-)

Soon I will be able to go with my daughter "Mumtaz" to shop for her matric ball dress and do all the things a mom and daughter does together in preparations for a ball.

 I am so thankful for being blessed with 2 amazing, loving and caring children. They are my pillar of strength, my reason for living

 I love them beyond infinity and because of them I’ve been kicking lupus's butt for the last 8 years
May they both blessed all the days of their lives with good health and happiness and may the continue to be followers of The Sunnah of our holy Prophet Mogamat SAW.

May Allah Swt grant me the health and strength to be around to witness them walking down the aisle and to meet my grand-children Ameen In Shaa Allah

 

 

 

 

Lupus Cape Town

 

I always knew and believed I was given Lupus for a reason. From the beginning of my diagnoses 8 years ago I wanted to start a lupus support group already, but due to this, that or the other reason I just didn’t get to it

 Finally 2 weeks ago Algamdoelilaah with the koedrat and the hiedayah of The Almighty I did it."Lupus Cape Town" up and running.May Allah Swt grant me the strength and hiedayah to run this group to the best of my ability.Shukran/Thank you to everyone who believes in me and who supported and who are still supporting me in this endeavour. Meetings will be held the last Saturday of every month at my place until we find a suitable venue. And the support group is not just for lupies but for everyone who is interested learning more about lupus, gout, arthritis, diabetes etc

 

 

 

May is Lupus awareness month  and I have decided to host a Ladies Lupus awareness evening.

Arrangements and sales of tickets are going very well Algamdoelilaah

Lupus group supports World kidney day 2014.03.13

Lupus group supports World Kidney day 13 March 2014

 

In February I heard a discussion on our local Islamic radio station about a

Big walk being held on World kidney day. The Kidney association is very dear to my heart as my lupus is active in my kidneys as well.

I approached the Kidney association and asked if I can register as a lupus group.

I spread the word via Facebook and bbm .A lot of my family and friends were super excited to support this worthy course. I had lupus t-shirts printed and ask everyone to wear purple or green “kidney awareness colour “.

I was amazed and in total awe by the amount of interest that was shown.

Almost a 100 entries registered under the lupus group for the big walk.

The atmosphere at the event was phenomenal and everyone had so much fun.

There was a lucky draw and about 4 people of the lupus group entries won prizes.

 

I am so glad my family; friends and I could support the kidney association and in the same time raise lupus awareness.

 

Shukran/Thank you all for supporting this worthy course

Living with lupus is tough but I AM TOUGHER

 

Lupus the silent, invisible killer you can't see.

Some days I feel like my body and lupus are at war

Lupus might make struggle and fragile but you won't make me fall.

Regardless of you making me weak I’m going to stand tall.

To everyone else you are invisible but I know you are real because of all the pain you make me feel.

Some days  I wear the biggest smile even though I want to cry.

My feelings, hopes frustrations, my ups and downs, my fears all contribute towards my tears

How many tears do you still want me to cry?

Living with lupus is tough but I AM TOUGHER

By Mariam Sterras